Gyakorlatok érrendszeri Ehlers-Danlosznál (vEDS) — SZIGORÚ súlykorlát 5-10 lb, NINCS kontakt, NINCS Valsalva, celiprolol
vEDS: legszigorúbb rezsim — súlykorlát 5-10 lb, NINCS kontakt, NINCS Valsalva.
Nem orvosi tanács
Ez az oldal tájékoztató jellegű. A Volya nem orvosi eszköz, és semmilyen állapotot nem diagnosztizál, kezel, előz meg vagy gyógyít. Krónikus betegség, terhesség, műtét után vagy gyógyszer szedése esetén étrend vagy edzés módosítása előtt kérd ki orvosod véleményét.
Pepin 2014 + 2017 international EDS classification + Byers 2017 GeneReviews. Vascular Ehlers-Danlos syndrome (vEDS) is caused by COL3A1 mutations affecting type-III collagen, leading to spontaneous arterial dissection/rupture, visceral perforation (sigmoid colon is the classic site), spontaneous pneumothorax, and catastrophic obstetric complications. Median survival was 48 years in the natural-history era; BBEST 2010 RCT showed celiprolol 200 mg BID halved arterial events. The vEDS exercise framework is the strictest in the catalog: AVOID any weight lifting >5-10 lb total external load, AVOID contact sports absolutely, AVOID competition or 'push through' training, AVOID Valsalva manoeuvres of any intensity. PRESCRIBE only low-intensity aerobic activity (walking, gentle cycling, water-walking) + range-of-motion + breath control. Annual vascular imaging via MRA or CTA only — arteriography (catheter-based) causes catheter-tip rupture and is contraindicated forever. MedicAlert bracelet + emergency card naming the vEDS diagnosis and the 'NO arteriography' instruction are mandatory because trauma teams default to invasive imaging that kills vEDS patients. Pregnancy in vEDS carries 12-15% historical maternal mortality (modern care: still 12%); pre-conception genetic counselling + maternal-fetal medicine consultation are non-optional.
Volya's catalogue carries only the foundation moves that fit the vEDS envelope: supported-glute-bridge for posterior chain low-intensity (NO weight, NO Valsalva), wall-push-up for scaled upper-body strength (NOT floor push-ups — Valsalva risk increases at full plank load), cat-cow for spinal mobility (gentle, no force), supine-knee-to-chest for low-back release, diaphragmatic-breathing for parasympathetic regulation + Valsalva-prevention training (the central vEDS skill: breathe through everything, never hold), standing-march for managed cardio at conversational intensity, ankle-pump for circulation, sit-to-stand for functional (NO weight), chin-tuck for cervical posture (no resistance). The AI coach also knows the nutrition side — BP control absolute low-sodium <2 g/day + Mediterranean + cardiology team, AVOID stimulants + caffeine >200 mg/day + decongestants + ADHD stimulants without cardiology approval (any arterial event is potentially fatal), AVOID grapefruit + Seville orange (celiprolol metabolism), fibre balance soft-stool target via hydration + soluble fibre (constipation triggers Valsalva), sigmoid perforation history small frequent meals + soft + moist textures + bowel regularity, AVOID alcohol excess + AVOID smoking absolutely, obstetric PRE-conception genetic counselling + maternal-fetal medicine + Mediterranean + folate 400-800 mcg + iron + Ca + B12, wound healing supportive protein 1.2-1.4 g/kg + vit C 500-1000 mg + zinc 15-30 mg, AVOID bromelain + fish oil mega-doses + vit E mega-doses (bleeding risk on celiprolol + thin friable arteries), MedicAlert mandatory + emergency action plan. CRITICAL: Ehlers-Danlos Society + vEDS Movement + cardiology (annual MRA/CTA) + vascular surgery + maternal-fetal medicine + GI + dermatology + dental + family genetic counselling (autosomal dominant 50% transmission). This is NEVER a replacement for cardiology + genetic counselling + emergency-action-plan care.
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vEDS: legszigorúbb rezsim — súlykorlát 5-10 lb, NINCS kontakt, NINCS Valsalva.
vEDS katalógus